Co-incidentally it was bowel cancer my wife had, so relate to a lot of what you are saying.
A couple of friends have Crohn's as well, it's nasty. Good to hear your doing ok. It will be interesting to see what comes of growing organs etc, looks like we'll be in a different world in 10, 20 years time.
Yeah those digestive tract things really hit hard. Really sorry to hear about your situation but hopefully the time is helping a bit. I really have no clue what it must be like to go through something like that and am lucky in comparison big time.
Man, I can relate to that. I felt like a million bucks after surgery, adopted a DGAF lifestyle after losing all my $$$ and started over. And people treat you so much differently if you have some visible marks from surgery.
I started a new job 9 days later. I have a big hole in my skull where you can stick your finger through the bone. Those surgeons are morbid as hell, chopping you up with power tools.
Yeah it's something you have to experience to fully understand. It's not like you want to look more sick, it's nice to still be young and good looking after all. But it's just frustrating to be in so much pain in general.
They sure are morbid, I got my take done by a super surgeon in the field and he had a flock of fellowship doctors with him always following him like little inters. One time they came in after the surgery and poked around a bit and shortly after they left I realized I was soaked in blood so I called the nurse to get them back while they were still on the same floor. When they came back in one of his underlings went to work on me ASAP while he stood there and said, "Don't worry we have a saying in surgery, all bleeding stops... eventually." then winked at me.
I remember when we met up in ( man its been sooo long, was it SF or SD? 2008 or 2009? ) you told me about this during our lunch with you and your GF.
I was thinking to myself that you look pretty good for such a condition.
Glad to hear things have changed for you and they seem to be heading in a better direction hopefully.
I know your out of Cali now, so when I make a connecting flight in your state again, lets hook up.
2010 I think it was in both SD and SF. SD at the A4D thing than that dinner in SF. It's definitely been to long hit me up when your passing through Vegas!
Both times you met me I was post major surgery and had a colostomy bag, could you even tell? It was definitely a time when I was feeling very good. Well besides the next morning in SD after drinking to much...
The main people that wouldn't believe I was actually sick was the DA's office trying to throw me in jail for possession of marijuana and calling my medical condition BS pretty much. After dragging things along for over a year and wasting so much of my time/money they dropped it the first court date after I was out of the hospital. $10,000+ of my dollars lost not to mention 100+ hours of time probably but a I certainly learned quite a bit.
That was a real eye opening post. With the colostomy bag was there ever any leakage issues? Or does it work out well with proper maintenance?
Damn sorry to hear that the J-pouch is so cumbersome for you. Hopefully it'll improve for you over time. Was that an elective surgery?
If the J-pouch doesn't improve for you, can you go back to the colostomy bag until something better comes along?
This thread is probably the best thread of 2015.
For leakage it's pretty much black and white. 99% of the time there is no leakage and it's all fine. The adhesive stuff was powerful and I'd change it every 5-7 days, those first 2 days it was on good. The 1% of the time there is leakage it gets pretty bad. I ripped it off myself moving around sleeping a few times and that was a huge mess but those were really the only leakage times. It would be caused when the bag filled up to fast with pure liquid because by body was doing something a little wrong, a mostly empty bag would never come off, it would happen when it fills up like a balloon without my knowledge while I was sleeping. I did a ton of skiing with it and took it easy because I was worried a bad fall could get very messy but fortunately never any issue.
It was elective although insurance covers it and everything. I imagine if I continue to have issues I could get them to go back to the bag and make insurance pay for it. I'll definitely give it some more years before that at this point but it is something I've though about in the future 5-10 years off.
Also to address your other post about the CL/Myspace lawsuits. Sure you dealt with Myspace awesome, but wasn't it a bit shocking the first time it happened to you prior to Myspace? Even being prepared it can be a bit scary the first time, a little fear in fact in that situation is probably healthy(would have helped Martin I bet). But after you've gone through it a full time you have more confidence in your plan and what's going on.
My mom has Crohn's disease and I think yours is more extreme case of it, she did try some Indian herbal medication that helped a lot, if I get the name of it, ill pm you, she's not in the states at the moment, but major motivational post, Thanks
Thanks hope she continues to do well! Mine was manageable at different times but just got out of control and caused to much damage at one point. I was being to much of a "tough guy" and fighting through pain I shouldn't have been pretty much.
There are definitely times you should be getting better medicine and not fighting through pain and I learned that lesson the hard way.
Part of my problem of not getting better medical treatment probably came from my IM success in the first half of 2009 actually. It's easy to feel a false since of invincibility when you are making tons of money all of a sudden out of no where. I might not have spent the money on stupid stuff but I definitely had a false confidence over how much control I had over my health.
That's another important lesson, don't let a big IM campaign or two go to your head. Stay humble and realistic about what you know and what you don't. It's easy to be over confident and think you must know more than anyone that makes 1/20 of the money you do.
Thanks for all the positive comments though guys this forum was a great support for me even when I had the first surgery back in 2009.